If anyone is interested in attending a talk by DEBRA next week, all are welcome. By attending you will be helping to raise awareness of this terrible condition. Please support if you can by coming along.
TALK BY DEBRA
(Dystrophic
Epidermolysis Bullosa Research Association)
CHURCH HOUSE, CROWCOMBE
WEDNESDAY 11TH JULY 2012
8.00pm
Can you imagine what it would be like to
live with third degree burns everyday of your life? That is what it is like for
Sohana Collins who suffers from a rare genetic skin condition, recessive
dystrophic epidermolysis bullosa (RDEB). The condition causes the skin to
blister and shear at the slightest friction, or even spontaneously, causing
lifelong disability and pain. At present
there is no cure.
Crowcombe WI are raising awareness of
Epidermolysis bullosa by inviting DEBRA, the only National charity that
supports individuals and families affected by this devastating condition, to
speak on Wednesday July 11th in Church House Crowcombe.
Please
come and support this amazing charity which
receives no government funding, relying on the generosity of the public to
carry out its vital work, improving lives and giving hope.
This
meeting is not just for WI members, it is for everyone. You are all very welcome
to this open evening.
Raffle
Raising
funds for DEBRA for the Sohana Research Fund, supporting research into
Recessive Dystrophic Epidermolysis Bullosa (RDEB)
Please
note
WI members meeting 7.30pm
Talk by DEBRA to start at 8pm
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