TALK BY DEBRA (Dystrophic Epidermolysis Bullosa Research Association)

If anyone is interested in attending a talk by DEBRA next week, all are welcome. By attending you will be helping to raise awareness of this terrible condition. Please support if you can by coming along.  

TALK BY DEBRA

(Dystrophic Epidermolysis Bullosa Research Association)

CHURCH HOUSE, CROWCOMBE

WEDNESDAY 11^TH JULY 2012

8.00pm

Can you imagine what it would be like to live with third degree burns everyday of your life? That is what it is like for Sohana Collins who suffers from a rare genetic skin condition, recessive dystrophic epidermolysis bullosa (RDEB). The condition causes the skin to blister and shear at the slightest friction, or even spontaneously, causing lifelong disability and pain. At present there is no cure.

Crowcombe WI are raising awareness of Epidermolysis bullosa by inviting DEBRA, the only National charity that supports individuals and families affected by this devastating condition, to speak on Wednesday July 11^th in Church House Crowcombe.

Please come and support this amazing charity which receives no government funding, relying on the generosity of the public to carry out its vital work, improving lives and giving hope.

This meeting is not just for WI members, it is for everyone. You are all very welcome to this open evening.

Raffle

Raising funds for DEBRA for the Sohana Research Fund, supporting research into Recessive Dystrophic Epidermolysis Bullosa (RDEB)

Please note

WI members meeting 7.30pm

Talk by DEBRA to start at 8pm